Skip to main content

Introduction

This blog is intended to provide information and updates on Beckett’s (and our) journey with hypoxic ischemic encephalopathy (HIE), Cerebral Palsy (CP) and Curririno’s Syndrome and how we are doing as a family of three. More than that, it is a way for us, Beckett’s parents, to share and process what we’ve been through as a family. Honest feelings and emotions will be shared. We think and hope that it will be therapeutic in some ways for us, and perhaps for others.

Originally, we wanted to start a blog as a way to keep family and close friends up to date, but have decided to allow the site to be public. Maybe it will bring someone going through a similar situation some comfort in the future. Feel free to share the site or my contact info with others you may know going through something similar, if it might bring them comfort.

I guess it's probably also worth noting that we often call Beckett "Little Bee", hence the name of the blog! 

This blog is written by Mom (Chantale). It is edited and reviewed by Dad (Keith) and Melanie (a.k.a. Aunty Mommy). 




Disclaimer: 

1. This blog is not intended to provide any medical information, recommendations, advice, or diagnoses. Any medical information described is based on our best recollection and understanding as non-medical people…

2. At no point in this blog is my intent to hurt anyone’s feelings or make people feel guilty or bad about things done or said. I’ve written a true reflection of my feelings through this process, but I know our friends and family have always had our best interest at heart.

Comments

Post a Comment

Popular posts from this blog

Hello again! Here’s an update

Happy New Year! I meant to create a blog post a few weeks ago to wrap up 2024, but life got busy and here we are. It's been a long time since I've written an update, so I guess there's quite a lot to update you all on.  In October, Beckett completed his 3rd ever therapy intensive at Canadian Centre for Development. He continued to work on his independent sitting skills, weight bearing in his arms, his intentional reaching and grabbing. He did really well, and within a few weeks we really started to see his body awareness and strength improve. This is what we've been told from other families that have been through intensives - normally you see the biggest impact about a month after the intensive wraps up. This was certainly true after his 3rd intensive. His posture and strength is so much better than before. We are still constantly fighting his strong extensor thrust that results in him throwing himself backward when sitting, and makes it really difficult for him to hold...
7 comments
Read more

Aunty Mommy Guest Post

For those who don't know me, I'm Melanie 👋 - Chantale's twin sister, and known to Little Bee as Aunty Mommy 💕 Little Bee and Aunty Mommy I've been thinking about writing a guest post for a long time. I have so many thoughts, emotions, unsolicited advice, rants, stories, etc. etc. etc. that I want to share, but don't know where to begin. So, what follows is a little bit of all the above, but mostly just Auntie Mommy's stream of thoughts. There's lots more where this came from, so I expect you'll be hearing from me again soon. Little Bee Beckett is my fave guy. Seriously, I just can't get enough of his sweet little face. But he's so much more than just a cute face (he does have the cutest face though).  Just cute It has been such a joy to watch Beckett grow and learn new things. Yes, he is behind, but I could not be more proud. His usual day is filled with more exercise and physio than a professional athlete (probably. I actually have no idea wha...
4 comments
Read more

Aunty Mommy is back

 I'm baaaaack! 💅 And I am exhausted, but for the best reason: the launch of Little Bee Gallery  was such a huge success, we're running low on our original inventory, and a bit run off our feet!  For those who missed the news, myself and my aunt Suzanne have formed a non-profit art gallery, with all net proceeds going directly to Beckett's special care costs (more on that below). We launched with a lot of pomp and circumstances, as any new business wants to do, and an online auction on select pieces - but don't worry, we're still open for business!  Our online gallery features originals and limited edition prints of artwork by myself and Suzanne, and special featured pieces donated by our Friends of Little Bee artists.  We will continue to add to the artwork available, so please help us continue to keep the ball rolling. If you or someone you know is in the market for a piece of art, I would love it if your first stop was our site. And if you're not in the marke...
2 comments
Read more